Time is a valuable commodity. More valuable than almost any living person can fathom. We want more of it, yet waste so much of it. It's been two years since I met Amelia. I've had two years to process and conceptualise what I saw, felt, did and didn't do. It's time to write about her life from a different perspective. One that has had the time afforded to it that her life didn't. I have had two years of explaining my 'Amelia' tattoo in a very sheltered way in an effort to contain my profound sense of loss and deep saddness. I have choked back too many tears to prevent others from feeling a sample of grief that the raw entierty of her story brings. I have chosen to keep my original blog post and add to it.
My neonatal death experience toll is at one. Not something I would wish upon anyone.
I had the pleasure of seeing a woman deliver naturally a breech (bum first) presenting baby. She was planned for a Caesar, but between mum and bub, they decided to forgo it. The baby was a mere 29 weeks. In Australia, with good NICU care, that's a very viable baby. In Nepal, the youngest baby in NICU (in regards to weeks from conception to birth) was 31 weeks. Two weeks makes a lot of difference! 29 weeks here is incredibly fragile. The doctors gave her a 50% chance of survival. That's a big statistic so I'll assume that's her chance if she had the best care possible in NICU for several moths. Her birth was marked with uncertainty and fear of the unknown.
I had hopes and assumptions that this baby would end up in NICU. To see someone die when there was every chance of them living is beyond painful and frustrating. Four days later I found out that the baby girl was alive, but not in NICU. Both mum and bub were on the postnatal ward. What I learnt after that changed my world.
Babies aren't made to leave the womb at 29 weeks and survive on their own. I was told that the baby was not receiving care because the family couldn't afford it. I asked a nurse if the baby was a boy, would they beg, borrow and steal money to keep him alive. Her answer was honest and unforgettable. She had shame written all over her face as she nodded and quietly said yes without looking me in the eyes. Treatment in hospital is not free like it is in Australia. You are required to pay for your care, however there is a well known fund for those who cannot afford care. In the instance where you cannot afford care, you receive it for free. This beautiful, premature baby required care. Not only did the family refuse to pay for that care, they also refused free care.
Unfortunately, the mother was 19 and the men in the family make the decisions. I learnt that when babies are not wanted by the family, the mother is starved with the aim to prevent her breastfeeding, thus starving her child. That is what happened in this case.
It was only days later when I was looking through the birth records book that I saw NND, meaning Neonatal Death, in red pen next to that babies birth details. I had heard doctors mumble "Passed" when doing morning rounds one day. No more, no less. I'm sure that baby was a trooper. She fought for every moment she had a chance at holding. She didn't even have a name.
I can't comprehend the amount of guilt I felt at the time and continue to feel. I contemplated fleeing the country to come home with her to ensure she had the chance at life she deserved. I imagined the legal loop holes I'd need to jump through to make it happen. I thought about being a 20 year old mother, forgoing my own dreams for her needs. I was too late. I have cried more tears for her than I have for any other human. I am committed to sharing her story in its raw, unjust nature. I also apologise to anyone with whom I have shared this story with and not detailed it in full. I selfishly struggle to repeat what was an upsetting experience. So
RIP baby Amelia. Thankyou for being my first breech birth and unfortunately my first 'neonatal death'. Thankyou for fighting. You gave me so much and I have a lot to thank you for. I have so much admiration and love for you baby girl. Happy birthday xx